Board of Directors
Our Board of Directors governs and advises us in our endeavors to save lives, empower families, advance stomach cancer awareness and education, and leads our efforts to fund the best research in order to make the biggest impact.
Roger has an extensive background in employee benefit programs, retirement consulting and related financial matters. In addition to many years in the insurance and financial services industry, he is a former Wisconsin Retirement System Benefit Specialist with the Department of Employee Trust Funds. He also is a part time instructor with the Madison College Business and Community Outreach program, and serves as a consultant with the Wisconsin Retired Educators’ Association in Madison.
Gretchen Borzi is honored to be a member of the Board of No Stomach For Cancer and is highly motivated to raise funding for more research and support patients and their families dealing with stomach cancer all over the world. She is a carrier of the CDH1 gene mutation, and received a total gastrectomy in July 2011 to reduce her risks associated with HDGC (Hereditary Diffuse Gastric Cancer). She also was diagnosed with lobular breast cancer and underwent a double mastectomy with reconstruction in May 2014. The breast cancer was caught very early via MRI thanks to regular screenings she has undergone since first learning of her genetic risk status. In spite of this, she continues to live a healthy and fulfilling life and feels extremely grateful to be a part of this supportive community. Born and raised in Massachusetts, she lives north of Boston with her husband and two children, and works full-time in the marketing department of Boston Symphony Orchestra.
Melanie Torborg, CMA, MBA
Melanie’s husband, Tom, died of stomach cancer in 2012 and carried the CDH1 gene mutation. Since his diagnosis, ten members of his family (siblings and cousins) have had their stomachs removed. He saved many lives, and Melanie wants to contribute her talents to No Stomach For Cancer as her way of helping others who are struggling with this disease.
Melanie is the Program Director of the Accounting Programs at Saint Mary’s University in Minneapolis. She has a Bachelor’s Degree in Finance and a Masters Degree in Business. She is also a Certified Management Accountant with over 20 years of experience in corporate accounting. Her favorite areas of accounting are budgeting, strategic planning, and financial statement analysis.
In 2005 Laura’s aunt was diagnosed with stomach cancer. Surgical observations indicated she had diffuse gastric cancer, a form of cancer that can be inherited. Years earlier Laura’s grandfather and another aunt had also died from stomach cancer. Through genetic testing it was revealed that the family was a carrier of the CDH1 gene mutation. While her aunt passed away from the disease, she left her family with valuable information that would help further generations. Genetic testing done on the extended family revealed that Laura, along with other family members, tested positive for the gene mutation.
Faced with statistics that indicated inadequate surveillance methods and a bleak survival rate for those diagnosed with hereditary diffuse cancer, Laura chose to undergo a total gastrectomy in October 2006. Other affected family members chose to do the same. With very little clinical information or support available at the time, it was the support of the small community of people also impacted by CDH1 and the total gastrectomy procedure that helped Laura and her family through such a difficult time. She hopes to further the mission of No Stomach For Cancer by providing support to the stomach cancer community and furthering awareness and research efforts. She lives in Libertyville, IL with her husband and two girls and is Corporate Controller of Argon Medical Devices in Lake Forest, IL.
Laura Ciezadlo joined the board of NSFC in August of 2015.
Melbourne VIC, Australia
Simone Busija lives in Melbourne Australia, and she is honored to be the first member on the Board of No Stomach For Cancer residing outside of America. Her father and uncle both passed away aged in their mid-50's of stomach cancer and upon genetic testing, the family discovered they carried the CDH1 gene mutation. Simone tested positive for the CDH1 gene mutation and as a result, had a total gastrectomy in 2011 to reduce her risk of stomach cancer. With a strong desire to use her experience to help others, she became an Ambassador for NSFC in 2012, helping raise awareness and funds in Australia for stomach cancer research.
Simone has enjoyed a career predominantly in sales/advertising and lives with her husband and 2 children. She is currently in the process of setting up a foundation to help families affected by hereditary cancers, to be able to communicate effectively with relatives. She is very grateful to be part of the No Stomach For Cancer community and looks forward to contributing to the board.
Simone Busija joined the board of NSFC in November of 2015.
Terri is humbled and honored to be a part of the NSFC Board. Stomach cancer hit her family in July 2014 when her father was diagnosed with stage 2 gastric cancer. He underwent surgery and chemotherapy in Baltimore, MD. After discussing his family cancer history and learning that three members had lobular breast cancer, doctors decided to test for the CDH1 gene and he was positive.
Terri tested positive for the CDH1 gene in April 2015 and had a total gastrectomy in July 2015. Throughout the process, NSFC was a constant resource and provided invaluable support for Terri and her family. Since her surgery, she has been actively involved in raising awareness and funds for research for NSFC in her home town. As a board member, she is highly motivated to expand these efforts on a broader scale in hopes of finding new options for her children (who will eventually be tested) and other cancer patients. She looks forward to supporting and helping others navigate through this terrible disease.
Terri lives in Urbana, MD with her husband Pete and two children. She is a former elementary school teacher who now works as an event planner at St. Andrew's Episcopal School in Potomac, MD.
Terri Beach joined the board of NSFC in January of 2016.
São Paulo, Brazil
Wagner is very proud to be a part of the NSFC board. Wagner comes from a background in Technology and has worked as a developer, system analyst, Business consultant and a Global Support Lead.
His sister Wanessa was diagnosed with Stomach cancer and passed at age 25, in 2007 his brother Francisco, aged 20 has also been diagnosed with stomach cancer and had a total gastrectomy performed. This year, he had been tested for CDH1 gene mutation and the result was positive. He followed screening exams and had his total gastrectomy performed in 2015 at the age of 40 after the diagnosis of diffuse gastric cancer.
As a board member, he will help make awareness resources available in other languages, such as Portuguese and Spanish, with the hope that these valuable pieces of information can reach a broader number of families all over the world facing this deadly disease.
Wagner joined the NSFC board in March, 2017
Jonathan (Jon) Florin
Jon joined NSFC in the Sping of 2015. He comes from a diverse background in marketing and customer service. His most important goal as the Executive Director is to bring stomach cancer awareness to the forefront of the public view and increase the media's attention to the disease. This is no small task, as stomach cancer is often disregarded as a public heath issue although there are one million new cases diagnosed each year. As a leading global advocate for patients, familes, and caregivers, our organization is focused on identifying ways to improve the lives of those affected by stomach cancer.
Karen E. Chelcun Schreiber
Following a 31-year career in accounting, law firm administration and technology Karen celebrated her early retirement in 2005. Two years later her brother’s stage IV stomach cancer diagnosis started Karen down an unexpected path. Having lost her mother to the same disease 25 years earlier, her quest for information led to the discovery of the CDH1 gene mutation in her family that causes Hereditary Diffuse Gastric Cancer (HDGC). While planning for her own preventive total gastrectomy, she established the Chelcun Family Fund for Stomach Cancer Research and launched the first version of this website in July 2008, known at the time as Be Strong Hearted. This call to action grew out of concern for her family’s stomach cancer story; it quickly became about every family’s stomach cancer story.
Karen’s brother Greg lost his battle in early 2009. The lack of awareness of stomach cancer, funding for research, resources and support for those affected by the disease, and the grim survival rates highlighted the need for an organization dedicated to fighting this disease. Already a leading resource for those affected by stomach cancer throughout the world, it was time to move beyond the family. Karen founded No Stomach For Cancer in 2009.