Unite with a worldwide community of people affected by stomach cancer.
We understand the impact of stomach cancer. We care about your health and well-being. Together, we can connect and share.
Knowledge gives you power, sharing gives you strength.
The No Stomach For Cancer (NSFC) network helps patients and families connect with people and resources, offers emotional support and provides a sense of belonging.
You'll see the diverse group of people impacted by stomach cancer and be able to read stories about the faces of stomach cancer. You can join the online community of families, patients, caregivers, and others who are interested in our challenges and our efforts. NSFC’s network provides information, resources and caring support.
After being diagnosed with breast cancer in April 2015, genetic testing revealed I had the CDH1 gene mutation. In June of that year, I chose to have a double mastectomy rather than a lumpectomy as anticipated with the original diagnosis. I found no local medical professional who knew anything...
I am Juan Manuel (44) from Argentina. My father died in 2013 (Gastric Cancer) and I knew I had the CDH1 gen mutated in 2016. I past through a total gastrectomy in 2017 and I wrote all the journey in my blog (IN SPANISH) I am living a plenty life as I did before the surgery so I hope my experience...
I'm a mother, a friend, a sister, a daughter, and a devoted physician who has become the patient. After a series of serendipitous events, I was the first person in my family to be discovered to have a rare genetic mutation called Gastric Adenocarcinoma and Proximal Polyposis Syndrome (GAPPS). Like...
My name is Jon Grossman, and I want to thank you for all that you have done for me, my family, and my fellow CDH1 mutation carriers. In 2016, we found out that a CDH1 mutation runs in our family. Now, 4 of us have had total gastrectomies and are doing great. I published a website to tell my...
I chose the name "My Pink Genes" because, for one, pink is my favorite color, and for another, I was diagnosed with a highly aggressive form of stage 3a breast cancer in 2018 at 32 years of age (grade 3 invasive lobular carcinoma - pleomorphic type ER-, PR+, HER2- in cancer speak). Pink being the...
' Go Without Your Gut .' My Journey Of Losing My Stomach Due To Hereditary Diffuse Gastric Cancer Syndrome. - Dylan Davison
When you think of gastric cancer you probably don’t picture healthy sisters in their early 30’s, but we are the faces of gastric cancer. Our family history is riddled with stomach, colorectal, and breast cancer, so at the urging of our doctors we underwent testing to determine if there was a...
Karen Chelcun’s journey through total gastrectomy at the age of 51. Karen lives in Madison WI. September 2008
In three years’ time (2001-04), Rose Evans witnessed the deaths of four family members. They all had had stomach cancer. Genetic testing revealed that all four — her father, her sister, and two of her aunts (her fathers’ sisters) — had a mutation of the CDH1 gene. In 1960, her paternal grandmother...
Brian Chelcun’s journey through total gastrectomy at the age of 26. Brian lives in Washington DC. February 2009
March 18, 2009, my life was changed forever when Tracey Leedom (Duke Geneticist) conveyed to me that I was a carrier of the CDH1 genetic change that my mother and grandmother have. Bethany Tucker’s story. March 2009
Chad Sapieha’s blog, Gutless . Chad had his total gastrectomy on March 2, 2009. He lives in Toronto, Ontario. March 2009
Allison Levine (Ali) was diagnosed on April 10, 2008 with signet ring cell carcinoma (gastric cancer). Ali ended her courageous battle victorious on Monday, March 9, 2009 at the tender age of 32. Allison’s journal & inspirational comments of visitors are a testament to her extraordinary character...
I am Megan McFetridge, a medical assistant working for Bryn Mawr Rehab in Malvern, Pa. since sep 2007. Working with stroke and brain injury patients has taught me to treasure my health and never take life for granted. In November of 2007, after my older sister (28) was diagnosed with HDGC, I found...
Within 7 weeks of CDH1 diagnosis I had a total gastrectomyin Sheffield, England at the age of 31. I live with my wife and son in South Yorkshire, England whilst learning the way’s of stomachlesslife! Lee’s story HDGC and me. November 2009
Teresa Feeney’s blog Latest Skinny . Teresa is the fifth member of her family to undergo a total gastrectomy in as many years. June 2010
An ordinary woman on an extraordinary journey. I am a daughter, a sister, an aunt, a wife and mother of two… and this is my little diary of my journey through gastrectomy. I live in Brisbane, Australia. Tammy shares her story HDGC & Me . July 2009
Sandra Sankar, from beautiful San Diego … My only brother died from gastric cancer at 37. I was diagnosed at 39 and found out that I have a CDH1 genetic mutation which I inherited from my dad who does not have gastric cancer. I had a total gastrectomy on Feb 18, 2011 and am still going through...
Lana is Taking Care Of My Mom Who Takes Care Of Me They say there’s a special bond between single mothers and their children. When I was 8-years-old, I lost my father to lung cancer and my mom became the sole provider. She worked hard to make sure our needs were met. And like many immigrant...
This Cancer Thing Sucks: A Hereditary Diffuse Gastric Cancer Blog Within the last few years, I’ve lost two close family members to stomach cancer. In 2008, I lost my cousin Rajen Sankar at age 37. In January 2012, I lost my other cousin, Sandra Sankar Poukkula (Rajen’s younger sister) at age 39....
I was contacted in October 2012, just after my 1 year post op total gastrectomy anniversary on September 1, 2011. A Faces of Cancer calendar and a documentary was being done on twelve cancer survivors in the area. I jumped at the opportunity to share my story, feeling like this was my way to...
In December 2012, Marne learned she had the CDH1 gene mutation. After losing her father, aunt, grandmother and others in her family throughout her life, she knew she was not going to let stomach cancer beat her. On June 7, 2013 she had a total gastrectomy. Marne shares her story, Life Without A...
Rick Sabbides was diagnosed with Stage IV inoperable stomach and colon cancer on June 25, 2013. His CaringBridge journal was created to keep Rick’s friends and family posted on his journey. Follow along at Rick Sabbides FAITH , a place where anyone can offer support and words of hope and...
We’re sisters/best friends writing about our lives and how it’s changed since we found out our mother at 56, was diagnosed with Stage 4 stomach cancer in December of 2012. Journaling and writing notes to each other is sometimes the easiest way to communicate in those moments we can’t pick up the...
In September 2013, Kate discovered she carried the CDH1 gene mutation. At a very young age, Kate lost her mother to stomach cancer and more recently, her younger sister. Though it seemed extreme at first, she decided the only option would be to have a total gastrechtomy and underwent surgery in...
Steve Dang is a husband, father, pastor, wannabe triathlete, motorcycle enthusiast, a fan of good stories and the Oakland A’s. Cancer is part of his story, but it’s not the story. In October of 2013 their lives took a detour when Steve was diagnosed with CDH1, which led to a total gastrectomy on...
“Sometimes the bad things that happen in our lives put us directly on the path to the best things that will ever happen to us” December 5, 2013 – My husband, my mom, my dad, and I sit around a round table at the hospital waiting for the genetic counsellor to join us. My husband is playing with a...
In 2006, Adriana Walsh lost her father Steve to stomach cancer when she was just 13 years old. In 2009, she learned that she tested positive for the cdh1 mutation that took her father’s life. Her most recent endoscopy in August showed evidence of stomach cancer, so she took immediate action and...
Roger Engnell was diagnosed with a CDH1 gene mutation on February 9th, 2015. He is 53 years old and the father of three. He is the middle of seven children and the second to be diagnosed with this mutation. The original mutation in his family was found as a result of testing done on his younger...
After Heather’s mother passed away at age 44 of gastric cancer and losing her grandfather to this disease, she wanted to do everything in her power to be proactive about her health risks, especially for her husband and three-year-old daughter. At the age of 30, she was referred from her hometown...