Participate In A Study
Supporting research through participation in projects and studies can be both interesting and personally rewarding. With the assistance of our Scientific Advisory Council (SAC) we will occasionally provide information about current studies that may be of interest to you.
Brandeis University, Waltham MA | Marcina Beaston-Casey, Genetics Counseling Student
The Psychosocial Implications of Hereditary Diffuse Gastric Cancer (HDGC) (Feb 2014)
Status: Closed February 13, 2014 Final thesis will be published on NSFC website by June 1, 2014
The goal of this research study is to explore the impact that Hereditary Diffuse Gastric Cancer (HDGC) has on families. If you have experience with HDGC in your family, you are invited to participate in this research study. Biological relationship is not required. For example, spouses and adopted family members are eligible for participation.
University of Otago, New Zealand | Centre for Translational Cancer Research
Genetic Predisposition to Gastric Cancer (Dec 2012)
Gastric cancer (also known as stomach cancer) sometimes runs in families. This high cancer risk can be due to the inheritance of a faulty gene. We have previously shown that mutations in the CDH1 gene predispose to stomach cancer, however, not all families with a high incidence of this disease have a mutation in that gene. In this project we are aiming to identify additional genes that explain the high incidence of stomach cancer in some families.
Memorial Sloan-Kettering Cancer Center, New York | Memorial Hospital Research Laboratories
Researchers now have the technology to perform DNA sequencing of a tumor’s entire genome (or genetic material) to determine which gene mutations exist. They can also determine additional changes to the genome including (1) duplications and deletions of portions of chromosomes, (2) alterations outside the DNA that turn genes on and off, and (3) alterations in expression of genes.
We need your help in determining how individuals with germline CDH1 mutation develop potentially lethal stomach cancer. If you or one of your relatives have inherited a germline mutation in the CDH1 gene and had surgery for a visible stomach tumor, you may qualify for participation in this research project.
BC Cancer Agency | Hereditary Cancer Program
Outcomes and Quality of Life after Prophylactic Total Gastrectomy (Sep 2011)
Status: Jan 2014 Study is closing down, analysis begins Feb 2014
The purpose of this study is to understand the complications and symptoms experienced by individuals who have had prophylactic total gastrectomy and their effects on a person’s quality of life.