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Osteoporosis/osteopenia.
September 21, 2013
11:38 pm
Christine
Member
Forum Posts: 3
Member Since:
December 27, 2010
Offline

Hi all,
Its been a while since I have been online. As I am now nearly 16 years post-gastrectomy (over 21 years since having stage 3 gastric cancer) and about 5 years post bilateral mastectomies I wanted to touch base about people’s experience with calcium, vitamin D, and iron supplementation. I was diagnosed with osteoporosis in 2007 and found to have 3 fractured vertebrae (I was non symptomatic) At the time I was pretty shocked because I was taking the RDA of supplements. I was pretty good with keeping up with B12 and my hemotologist/oncologist was monitoring my iron (I have needed some IV iron every few years because I can’t tolerate oral supplements) no one really monitoring my bone health. As a physical therapist I thought I was in pretty good shape, certainly a good weight and build with enough strength. Its really important I found to have a high caliber DEXA scan because your typical one may not provide enough information.
Right now(being followed by endocrinology(sp?) my bone mass/density increased about 5% following 3 treatments with IV Reclast, double doses of Vitamin D and Calcium, and prescription Calcitriol. 5% doesn’t sound like much but considering its been about 5 years which typiclally means your bone density decreases the doctors are really thrilled. Usually they are happy if you don’t get worse. Of course we are not typical patients so they see us as anomalies.
Has anyone else had experience with endocrinologists??
Thanks,
Chris Smile

September 23, 2013
11:51 pm
Karen Chelcun Schreiber
Madison, WI
Admin
Forum Posts: 112
Member Since:
August 11, 2010
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Hi Chris,
I haven’t had any experience in this regard. But I do think that people fail to think about bone density issues following TG. I asked my doc to do a baseline bone density test prior to my TG (just 5 years ago for me) so I could compare moving forward. I know I’ve had some losses in this area – I think primarily due to the fact that I haven’t been as diligent about working out following TG – and I’m working on changing that now.

Your post is a good reminder for me to be more diligent in this regard.

Karen

September 24, 2013
4:28 pm
khaueisen
Member
Forum Posts: 3
Member Since:
September 4, 2013
Offline

Thank you for the reminder about the osteoporosis. It is very uplifting to find others who are 16 and 5 years out.)- Smile

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