Welcome to the No Stomach For Cancer Community Forum!
Uniting the caring power of people worldwide affected by stomach cancer comes in many forms. The NSFC Forum is one of the many ways to unite and support those who have been affected by stomach cancer.
Whether you are a patient, a survivor, a caregiver, or are at risk for any form of gastric cancer, including hereditary gastric cancer, you will find a real sense of community here.
People’s willingness to get involved, to share their stories and experiences, to support one another…this is how we are going to ultimately win the fight against stomach cancer.
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December 27, 2010
Its been a while since I have been online. As I am now nearly 16 years post-gastrectomy (over 21 years since having stage 3 gastric cancer) and about 5 years post bilateral mastectomies I wanted to touch base about people’s experience with calcium, vitamin D, and iron supplementation. I was diagnosed with osteoporosis in 2007 and found to have 3 fractured vertebrae (I was non symptomatic) At the time I was pretty shocked because I was taking the RDA of supplements. I was pretty good with keeping up with B12 and my hemotologist/oncologist was monitoring my iron (I have needed some IV iron every few years because I can’t tolerate oral supplements) no one really monitoring my bone health. As a physical therapist I thought I was in pretty good shape, certainly a good weight and build with enough strength. Its really important I found to have a high caliber DEXA scan because your typical one may not provide enough information.
Right now(being followed by endocrinology(sp?) my bone mass/density increased about 5% following 3 treatments with IV Reclast, double doses of Vitamin D and Calcium, and prescription Calcitriol. 5% doesn’t sound like much but considering its been about 5 years which typiclally means your bone density decreases the doctors are really thrilled. Usually they are happy if you don’t get worse. Of course we are not typical patients so they see us as anomalies.
Has anyone else had experience with endocrinologists??
August 11, 2010
I haven’t had any experience in this regard. But I do think that people fail to think about bone density issues following TG. I asked my doc to do a baseline bone density test prior to my TG (just 5 years ago for me) so I could compare moving forward. I know I’ve had some losses in this area – I think primarily due to the fact that I haven’t been as diligent about working out following TG – and I’m working on changing that now.
Your post is a good reminder for me to be more diligent in this regard.
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