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Non-cancerous total gasterectomy in 2004
February 17, 2012
4:25 pm
Pat
New Member
Forum Posts: 1
Member Since:
February 17, 2012
Offline

Good afternoon,

 

First of all I hope that I am not intruding here, and if I am I apologize. Even though I had a total gasterectomy because of a strangulated hiatal hernia in 2004, and have had a fairly rough time dealing with the results, I know through the loss of my favorite Aunt that stomach cancer can be a long painful journey that does not always have a happy ending.

 

My story goes like this. In May of 2004 while employed in law enforcement, I was sitting in the squad during the wee hours in the industrial park counting Ferrel cats for lack of anything else going on. While eating a snack I thought it was weird that my throat was filling up, and I had a bad pain in the middle of my chest. After a few minutes all appeared to be well, and I just figured it may have been caused by the way I was sitting, or from the new ballistic vest that felt a little too tight. Upon getting home that morning I started feeling that pain in my chest again. I later tried eating a piece of toast and right away it felt like it was going nowhere. So in my infinite wisdom I tried drinking some milk to help it go down. In about 3 seconds I realized the throat was plugged, and had the worst pain in my chest that I could imagine even possible. My wife then tossed my carcass into the vehicle and took me to the local ER. I remember being there at the desk, and the next thing I knew was when I woke up with a tube in my throat 4 days later.

 

The surgeon explained that because my stomach had become lodged in my esophagus, the blood supply to it had been pinched off, and the stomach was removed because it had become necrotic. I went from 190 pounds down to about 125 within a couple months. Since then I have had a hard time gaining or maintaining my weight. I am no longer in law enforcement because of the physical demands that can occur.

 

I found this site while researching the anemias associated with partial or total stomach removal. For the past 8 or 9 months I have had what seems to be constant fatigue even after getting up in the morning. I also do not have any ambition, and could pretty much care less about anything. I have been missing work at least one day a week for the past 2-3 months……….thank god for FMLA. Several months ago my PCP prescribed some ferrous sulfate because my iron levels were low, but not yet near the anemia level. Two weeks ago I saw an Endocrinologist who ordered some blood labs that showed even though I have been taking the iron supplement, my iron levels have dropped to the point of iron deficiency anemia. She said that it does not appear that I am able to absorb any iron. I thought this was strange not only because of the supplement I have been taking, but because I drink at least 3 Ensure Plus every day, and try to eat high iron foods. Now she is thinking about having me get some sort of iron by IV. This will be discussed more next Tuesday.

 

If it is ok for me to be here, I would like to hear from others in regards to B-12 and iron anemias, and what others have done to correct the imbalances. I am kind of fearful that the Endo is thinking that this IV iron is going to join the B12 injections and become a permanent part of my life.

February 20, 2012
8:43 pm
Teresa Feeney
Member
Forum Posts: 8
Member Since:
October 5, 2010
Offline

Hi Pat,

You are certainly welcome here. 

It's not unusual what you are experiencing with the iron. Malabsorption of nutrients is common in people who have had TG. Iron must have acid (like what was in our stomachs, when we used to have them) to be properly absorbed. Acsorbic acid (Vitamin C) has been proven to assist with iron absorption, so if you are REALLY leery of IV iron, try taking your Iron with OJ, pineapple juice or a chewable vitamin C and see if you get any improvement.

There are infusions and injections for iron so make sure you get all the pros and cons of both. There are risks involved so, again, just make sure you get all the information from medical professionals.  My niece gets iron infusions a few times a year and is totally fine with them. She had a bit of an allergic reaction the first time so now they treat her with Benadryl and something else before giving the infusion. I know of a woman who got the injections and she said she had a hard lump on her rear for almost a year. I guess the iron literally just bundled up there and took a long time to dissipate. She now opts for infusions over injections. Don't want to scare you off, that's just what I know second hand.

As I said you are totally welcome here, but I did want to mention an additional resource that can help you even more. It isn't a forum like this but its a Yahoo group called Total Gastrectomy and works through your email account. You can set it up so that you get all the emails, a digest or you just go to the group website to read comments there. There are people of all ages there from all over the world all sharing their experiences with Gastrectomy. Some who have even had the surgery for the same reason you did! I certainly don't want to sway you away from this site, but that one is currently more active so you may get quicker responses and find more people who have direct experience with your exact issues.

http://health.groups.yahoo.com…..portGroup/

You do have to be approved by the moderator, which may take a day or two. It will be worth your while and you will see some of us NSFC folks there as well. While you are waiting, I hope you take the time to click around on this website. If you look under the blog section, you will find categories that link to lot of information you may find useful. 

Teresa

February 20, 2012
9:39 pm
Karen Chelcun Schreiber (NSFC)
Admin
Forum Posts: 74
Member Since:
August 11, 2010
Offline

Welcome Pat,

Yes, of course you are welcome here!  Whether losing a stomach to cancer or for some other reason, those living without a stomach face similar challenges.

Teresa had some good suggestions.  We've also added some info on our site about nutritional concerns – so check that out at http://www.nostomachforcancer……l-concerns  Look under “Nutrient Deficiencies” where we just posted new info about B12 and Iron.  Hope it helps a bit.

Personally I have not had issues with iron and b12…perhaps there are others in the community who have experiences to share.

Karen

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