Connect with others closer to home who have been affected by stomach cancer. Whether for support or to join forces with others choosing to take an active role in the fight...these are the connections that will move us toward the mission of NSFC: to support research and unite the caring power of people worldwide affected by stomach cancer. The NSFC Community is a worldwide community. The following forums represent the six countries with the most active NSFC Community members at this time. We'll gladly add more.
Chat with others as you digest the most current research consensus and using your family history and personal intuition to evalutate your risk and decide what you need. "How is it done?" From start to finish, share your experiences and / or questions about the genetic testing process.
Tough issues; screenings, surveillance, prophylactic gastrectomy. Exchange information, questions, research information for your doctors, and how to be your own (or your loved one’s) best advocate. This is the place to ask, respond, discuss, and find strength for difficult times as you plan your next steps.
Why is there so little information out there? Bring your own knowledge, resources, and questions to this forum, to help each other and also to bring new information to the scientific and medical communities.
Discuss the various issues related to TG (the complete removal of the stomach.) Regardless of the reason for removal, we share many of the same challenges following surgery and adjusting to life without a stomach.
A million questions, and a whole community of people who are living normally post "TG" (total gastrectomy). Here is the place to ask advice at every stage of the surgery: before, during hospitalization, and after.
"What?!? You can feel "normal" again?" Yes, you can! The burning question for those contemplating TG: How will my life change? Share how your life has changed - for better or for worse. Diet & nutrition are key to a successful pre-and-post-gastrectomy life, but another area where information is sparse. Chat here with others for their tips and advice. There is no question that's too simple (or stupid, or silly, or unimportant) to ask here!
Share experiences and challenges about pregnancy following TG. It's a difficult area to get guidance as it is not a common situation, but the questions are coming with increased frequency. Share your experiences here.
How to stay determined, focused, and informed as you care for your ill family member(s) and their needs. Talk with others about what they have learned along the way. You can also chat here about having family members with genetic risks and how to support them.Staying strong and healthy as a caregiver is so important, but so challenging. Caregivers understand this more than anyone else. Come here to share and offer mutual support and empathy.
The loss of a person you love who has had stomach cancer is tragic and can be even more profound when other family members are also at risk. And losing your beloved involves a journey which others can help to guide and support.