International group to discuss updates to HDGC guidelines

WorkshopFrom March 19-21, No Stomach For Cancer’s founder, Karen Chelcun Schreiber, is attending the 2nd Consensus meeting on Hereditary Gastric Cancer at the Radboud University Medical Centre in Nijmegen, The Netherlands. The 47 workshop attendees represent stomach cancer researchers and medical professionals, including gastroenterologists, surgeons, geneticists, counselors, dieticians, and pathologists, from all over the world, including the United Kingdom, the Netherlands, New Zealand, Austrailia, Germany, Denmark, Italy, Canada, Portugal, Switzerland, France, and the USA. Four members of NSFC’s own Scientific Advisory Council are participating (Fatima Carneiro, Parry Guilford, David Huntsman, and Pardeep Kaurah). NSFC board member Jennifer Lai will also be in attendance. The group’s goal is to make important updates and changes to the current consensus guidelines for HDGC.

Karen was invited to chair the newly-added Patient and Dietician workshop group to present and discuss a patient viewpoint on how effective the current guidelines are and what outstanding issues still need to be addressed in research or clinical management. The other specific group disciplines are gastroenterology, surgery, genetics/basic science, counseling and psychosocial aspects, and pathology. Keynote lecturers during the workshop are, Parry Guilford (geneticist, NZ) and Carlos Caldas (geneticist, UK), presenting the talks “Translation of basic science into clinical practice” and “How advances in genomics are impacting understanding and management of familial gastric cancer syndromes,” respectively.

NSFC is extremely proud to be a part of this important effort. These guidelines have not been updated since 2009. Since then, the general awareness of HDGC and the identification of many more families affected by it, has grown significantly. Some of the questions brought forth by many members of NSFC over the years will be addressed at this workshop. Among others, they include genetic testing criteria, DNA banking, lobular breast cancer risk, colon cancer risk, endoscopic screening and surveillance, prophylactic gastrectomy options, and long-term post-TG issues.

We wish Karen and her colleagues the best of luck in their efforts, and look forward to hearing about the results of the meeting in the coming weeks. Stay tuned!

About Gretchen Borzi

Gretchen Borzi happily serves on the NSFC Board of Directors, and lives and works in Massachusetts with her husband and two children. She underwent a successful prophylactic total gastrectomy in 2011.
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