The Genetic Information Non-Discrimination Act

The Genetic Information Non-Discrimination Act was proposed more than 10 years ago to protect individuals with genetic mutations as the source of potential diseases, such as HDGC. Those who needed the most protection were asymptomatic individuals, with no diagnosed illness, who were applying for health insurance coverage. Early in 2008, final Senate deliberations were in process, and one of our family members wrote an appeal for support, along with a brief explanation of HDGC, to the Senators from Wisconsin, Senator Russ Feingold and Senator Herb Kohl. Both Senators replied with positive messages of support. The bill ultimately became law a few months later, with bilateral Congressional support, clearing one more hurdle for family members who need genetic testing without the burden of fearing insurance discrimination. Read a summary of the law. April 2008.

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